Author: kathleen

Provigil — anti-narcolepsy drug — tried it for a few days and really didn’t like it. Would much rather sleep and fix the problem that way.

And it definately screwed with my blood sugar. I was consistently — all day, around 20 units higher than normal. Blood sugar is back down where I like it.

I am sleeping a bit better, but am still waking up.

The best move is that the scale is moving in the right direction!

Saw my MD sleep doctor yesterday. Was almost at the end of my rope, tired, which they could all see. That was good.

I asked for pain pills and we compromised with a 24-hour anti-inflammatory which seems to help already. Felt better going to bed, and feel better today.

Also got a narcolepsy drug also labeled for OSA (obstructive sleep apnea), for the sleepiness, but so far, I think it just makes me want to toss my cookies more. I think that is a symthom of not enough sleep too.

They also sent me home with an oxymeter. So here I am, sleeping with a CPAP, an insulin pump, and the oxymeter. I got completely woud up in the mess and had to take about 5 minutes to get unwrapped around 1:30. Husband was dumb enough to ask if I slept okay. NO, I DIDN’T! But I think they got good data, as I woke when I often do.

I’ve been going through a weird cycle — hopefully we can get this fixed. I get progressively more tired, more strung out, then finally get to a point that I sleep the sleep of the dead — often as much as 10 hours (machine showed this to the doctor). I predict that really good sleep is going to hit in the next couple of days. Or at least I hope.

I also wake up a lot during these cycles. Last two nights were around 4 times. I usually only have to get up once — but do have a bit of trouble falling asleep, especially when bond in medical cords

FYI: being tired seems to increase my insulin resistance slightly. I’m consistently running 10-20 points higher both yesterday and today, and have the temporary basal on.

Husband and I were both very ill at the same time with something that caused vomiting and diarrah. We’ve never been sick at the same time before and it didn’t go well. Usually there is someone in the house available to go get whatever we’re out of that the other person craves. Not this time.

We’re both feeling better now, and have restocked on “sick” food.

Weight loss is going super, and I’m using less insulin than I ever have, finally. I met with my CDE about it on Wednesday, and got some good ideas on how to proceed. We’ve agreed to meet monthly. I’ve gone from 100-120 units a day to 50-60 units a day, total. AND I have much better control.

I’ve lost somewhere around 15 pounds, I think, since I don’t know my max — the scale was broke when I started and I thought I weighed twenty pounds less.

Sleep isn’t going well at all, but being sick didn’t help that. I’m seeing the sleep medical doctor on Thursday. I’ve come to the conclusion that I probably need to take some light pain pill — but heavier than OTC a few hours before bedtime and that would solve most of it.

Also getting rid of the gastric reflux coughing too, but I think some of that will come with more weight loss.

The other really good thing is that I’ve been able to work out in the morning at least 6 days out of 7 — and still get the workout down in the afternoon.

April 24, 2004

I’m very proud of myself, because my pump tweaks are working well. HOWEVER, I’m calling Monday and asking for a new pump because last night the occulsion alarm went off again and this time I slept for 3 hours.

The good news, is that my blood sugar was 117 when I woke up.