Author: kathleen

  • The problem with drugs….

    I know a lot of diabetics are paranoid over the drug industry. The diabetic press is real bad about encouraging this paranoia — and might be the source. I know that a lot of articles question if the reason there isn’t a cure is that the drug companies are afraid they will lose market share on insulin, etc.

    As I see it, it’s not the drug industry, but the trial lawyers.

    Company X comes out with a new drug call it Y. It goes through the FDA pipeline — which is about a 10 year process.

    They release Y to the public, and a small subset of the population has a side effect that they missed in clinical testing.

    Then Company X gets sued, having to pay out a lot of money, and now Y isn’t profitable.

    This actually happened to me. The only drug that has controlled my gastric relux is propulsid. Several doctors decided to prescription to populations that were not covered by the package directions and they got sick (I think heart related complications). The manufacturer wanted to avoid the lawsuits, so they pulled it off the market and all related medications have also been pulled. As a result, I no longer have access to that drug or any of the related drugs, and we can’t seem to control my GERD.

  • Why I absolutely love Animas

    First, their pumps are really water tight. I really don’t have any qualms about spending a day out in the backyard in the pool. Of course, it isn’t happening in February, and I wouldn’t spend every minute in the pool, but I’ve been know to spend some time there. It’s in the shade a lot of the day. (We do live in Texas).

    Second, every single person I’ve ever met who works for Animas is happy where they work. You hear it in their voice.

    If you have a problem they fix it. The clip has broken off my pump twice — now I am tempted to buy a spare, because it always breaks on the weekend, first on Saturday, second on a Friday with a Monday postal holiday, so it does mean I’m without the clip for a few days, and I use my clip! And I haven’t been charged once.

    Donetta — the local pump trainer is just absolutely wonderful! I cannot say enough about her.

    Well, they have one issue. Their billing system is a bit strange. Don’t get me wrong, I get bills, I pay them and I get receipts. It’s just every time they send me a bill, every single transaction from day 1 is on it. I used to a bill that has last month’s balance, this month’s transactions, and the new balance.

    And heck that might a good thing.

  • Why I like Therasense

    First, I will admit to some FUD (Fear, Uncertainly and Dismay) that they were bought by Abbott.

    Here’s what I like about Therasense. If you call freaked out because your meter is acting weird, and you are a new diabetic, do they do not treat you like you are stupid. FYI: Lifescan did treat me like I was stupid when I couldn’t get their One Touch Ultra Smart to work — and I wasn’t a new user and I wasn’t freaked out. I went through 8 test strips to get one blood test to work. I do have a One Touch Ultra just in case something happens with Freestyle. (Long story, but Animas is handing out free Ultra Smarts). The secret — you can’t bleed to much with their meters and test strips.

    The other thing about the Freestyle, is that the test strip doesn’t care if you don’t bleed enough or you bleed too much. If you don’t bleed enough, you have time to give it enough blood to make the meter happy — yeah the blasted things are vampires.

    Every single dealing I’ve had with Therasense Freestyle has been cool. Well, they don’t do email as well as I would like, but they do phone really well. (I have trouble with doing phones since I’m a classroom teacher who has students from 8:00 – 4:00) The good news, is they do phone outside that window.

  • CGMS – We’re getting closer

    Medtronic MiniMed: Protect My Child

    Unfortunately this is by Mini-Med. Sorry, but after watching the insulin-pumpers list since June, and reading the archives back through March, these are not people I want to to trust with my life.

    They’ve apparently screwed up every new device they released this year.

    The Paradigm system only works with properitory infusion sets. (FYI — this is why I always have hated Macs).

    The BD Monitor that links with the Paradigm 512 and 712 gives off error messages on 3 out of 5 test strips (okay, maybe it’s 2 out of 5), to just about everyone who has used it. The only people who don’t seem to follow some really bizarre instructions.

    They sold a bunch of insulin pumps as water tight (or was that proof — there is some difference between the terms), then had most of them fail — giving too much insuiln in most cases — as soon as they got damp. I was just thinking about a pump then, and we have a pool so I was sure glad not to have gotten one of those, and have an Animas that is water proof.

    A group of people have been harassed by the company for bills they were told had been paid by their insurance companies or were told were forgiven as long as 4 years ago. Usually co-pays.

    A large number of people hate their new insulin set — the Quick Set Plus. While I attribute a lot of that feeling to a “who moved my cheese feeling”, I feel their pain, as I tried SpectraRX sets and hated them for many of the same reasons — and I really wanted to like those sets.

    It seems it won’t be available for a couple of months, so hopefully Therasense’s Navigator will be on the close horizon.

    And it is definately NOT a company I want to use to deliver me a closed loop system.

  • Politics and Diseases

    I’ve never been fond of government sponsored research and am even less so right now.

    I honestly feel that diabetes research, heart disease research, etc. should be privately funded, and not funded by the government.

    I even feel that way about space research these days — it was different when it was a defense related thing, but it isn’t now. In fact, I just said to my husband that putting money into going to Mars right now, is like buying a plasm TV when you can’t make the mortgage payment.

    I think we’re much better off if we, as a government spend money for educating everyone rather than working on special interest projects. Of course, I’m a teacher … but I wouldn’t be teaching in public school if I didn’t believe that.

  • It’s going to be a while on the CGMS

    President Proposes Increase in Medical Device Budget for FY 2005

    This link explains a lot on what goes on when it comes to medical device approval.

  • Scary letter

    Got a letter from the state insurance board, almost didn’t want to open it because I was afraid that it might tell me that I was finally and unrevokable denied on reimbursement for the pump.

    But it wasn’t that. Just told me they were working on it and who was in charge of the case.
    The same nurse who I’d talked to on the phone.

  • Panic Attacks

    Panic Attacks

    This is interesting because I’ve had panic attacks, but I’ve always had a good reason for them. The first, I was trying to repel at AFROTC Camp and had one — though I had no real height problems before — I always figured all the stress induced throughout the 4 weeks was part of it.

    I also had one when I lost my car in a parking gargage, and will admit that it led me to a bit of agrophobia, but I always linked that to the stress I was going through while my dad was dying of a terminal illness (the diabetes induced one).

    Also a few associated with dentists.

    So are those true panic attacks or something else?

    I have known people who have had panic attacks too, and they are usually fairly level grounded people.