Saturday,I stayed asleep until my alarms went off and I was able to turn them off, fix my mask one go back to sleep after eight. I feel good, not tired.
The rest of the good news is that I have been able to go to sleep easily.Hopefully, I am "fixed".
The two days have been typical.
I can go to sleep on time with little problem. However, I woke up at 3:00 am on Friday and 4:00 am on Saturday. Not a problem on either day as I could sleep in so both times I got up for about an hour and then went back to bed with no problem.
However, on the days I can’t get up as I have school the next day, I toss and turn until the alarm clock rings and I feel like I’ve been in a car wreck the next day.
I started having trouble sleeping again. Thanksgiving week it stated and I attributed some to fatigue due to working out so more more than usual.
I got to the point Wednesday of last week that I called the doctor. They did not call back.
So I called again Monday and the first appointment available was next Tuesday. Then I talked to them on Wednesday and they gave me an appointment for this morning.
Then the nurse called Thursday evening to say doctor was sick so was canceling Friday appointments but might see patients Friday afternoon and they would call. I’m waiting now. I even asked if someone else could see me. Nurse said the doctor would not do that.
Well I did take some of the matter in my own hands and called the durable equipment people who handle my mask and CPAP equipment.
I am going to talk to the doctor about backup plan and have wanted to since my call was not returned.
The DME people decided I had lost enough weight that my mask was not fitting well enough. Hopefully-that will fix the problem.
Unique Accessories has a lot of good stuff. I’ve got several of their regular t-shirts for working out in, but their sleep T’s are fabulous for sleeping in, especially with the cool nights we’ve been having in Dallas.
TShirts
The great thing about our T-shirts is, the pump is inserted into the pocket from the inside of the shirt, with complete access from the outside for bolusing. All tubing stays underneath and out of your way. We use pre-shrunk, Hanes Beefy-T’s. Pocket stays securely shut with a Velcro closure.
I should have enough to last.
SYMLIN, the company’s diabetes drug that is used in combination with insulin, is in a fairly small market — last quarter, it racked up just a tenth of the sales that big brother Byetta made. In order to increase sales of SYMLIN, Amylin got a pen formulation approved by the FDA, which it plans to launch in January. The pens make it easier for the patients to inject themselves and have been used as a way to increase sales in other products, such as Sanofi-Aventis‘ (NYSE: SNY) SoloSTAR Pen for injecting its insulin product.
I don’t know why I didn’t ask them before — I love their T-shirts, but I really have been wanting a night gown ….
Anyway, I finally emailed them and asked about an extra large size cotton nightie. Got it in the mail today and it’s great. Both the pump and the Dexcom meter fit in the pocket and didn’t fall out when I fed the dogs (one of my big tests).
I’ll probably let them continue to run lose when I’m sleeping but it’s nice to have a night gown that works.
I think I’m going to order some more stuff from them this evening.
Wish they had this when I started Symlin and if you are the least bit interested in giving it a try — go to the Symlin web site and sign up.
They called yesterday when I was out, and I returned their call today. Very knowledgeable and personable nurse on the line.
Also, she said that they were starting the pens in January 🙁 I think I can last that long and she said, definitely see about getting samples from the local rep through my endo if I run out.
She also said, since I had joined the support group, they would email me and let me know when the pens were starting to ship.
Very good resource!
The Symlin web site is at http://www.symlin.com
Interesting article today in the Dallas morning news. My Aysha, and most of the dogs that I helped trained back in the day, were bark and hold dogs. They were taught to fight only on command OR if their handler was physically attacked. She was also taught to let go on command. And that is a lot safer legally than the other way (which is talked about in the article if you care.
While it seems like the no-bite training would remove a police dog’s real power and effectiveness, the “bark and hold” method is being used by a few police departments throughout the country, including Allen.
Police taking bite out of unit | Dallas Morning News | News for Dallas, Texas | News: Local News
I’m anxious. I called the 1-800 number and asked about the pens, telling the phone answers that I was trying to see if I had enough vials to last (I think I do, and if I don’t, I’ll beg for samples).
The official word is that the pens will be available in January 2008, but check with both my pharmacy or them if I need to order more before then.
It wasn’t easy but I managed to meet my goal of walking for 2 hours every day of my Thanksgiving break. Some days were harder than others. I managed it even though my knee has really been bugging me, we have wet, cold, miserable weather.