Blog

  • Jenny Craig Update and #t2doc Stigma

    I've maintained my weight loss for 3 weeks (this is not a bad thing).  I think part of it is that the next decade is bothering me a bit.  I've lost a lot of inches, especially in my bust and hips.  Which also explains why I can still wear my jeans though they fit funny, very large in the hips.

    I mentioned the #t2doc stigma to my counselor and we also had some issues with the computer.  She didn't realize that by singling us out, they are adding to the stigma.  It got weirder because I wanted to go on the travel menu this week and she didn't think she could sell me the Anytime Bars.  It's odd because they have the best carb to protein ratio I've ever seen, and they are not very high carb.  So we had to call the nutritionist and "get permission".  She explained that there wasn't anything magical about the Type 2 menu and that a lot of Type 2, and insulin dependent clients eat the regular menus.  I didn't rub it in to my counselor, I'll wait.

    We also had an issue getting my discount on the menu, but now she knows how to do it.

    As a reward, I went and bought some athliesure wear off the rack at Nordstrom's.  Not plus size, though oddly enough the XL in Zella is actually larger than their 1X according to the website.

     

  • Had a lovely time at #DiabetesLinkup #T2DOC

    Dulce and I made it home last night, safe and sound.  I know I enjoyed the trip and I think she did too.  I really enjoyed meeting everyone, especially @MHoskins2179 from @DiabetesMine, Dr.P @not_defeated – I spent them most time with them, but also Michele @DiabetesWhiBlk, Bill @iRunT2D, Chris @cgoldrick of Edelman, Anna of @diabetessisters, Jill @100poundsgone, Gene Kunde  Diabetes Hands Foundation, Sarah Odeh Diatribe  , and Shelby @diabeticfoodie.  Hoping I didn’t leave anyone out.

    I especially want to thank Lily of @AstraZenecaUS for iniviting me and helping with the arrangements.

    The hotel was nice.  Plenty of places for Dulce to sniff outside.  The AstraZeneca site is really nice and she really liked the smells there. 

    It’s incredible that a big pharma firm wants to put themselves out of business in the diabetes space.  I have used one of their drugs in the past: Symlin.  Though the lapband has eliminated that need.

    Traveling is hard on me.  There is the arthritis (complication of diabetes but something I’ve been dealing with a long time).  My weight, but I fit in airline seats now, especially if I’m not in the middle and haven’t needed a seat belt extender in a long time.  I will admit to leaning away from my neighbor.  And the social anxiety. 

    The social anxiety is the hard part, and it does keep me from doing some fun things – but I didn’t let it get in the way this time.

    One huge issue and about to make a complaint with American.  They contacted me on Wednesday about Dulce (the service dog) and assured me that there would be no problems and that we only needed her vest.  Well on Friday, Ron Reagan airport, an agent demanded her paperwork.  No issues in Dallas.  The letter from my doctor that I keep on my phone was acceptable.  I assume she thought Dulce was an emotional support animal, which she is not.  She is a medical alert dog (diabetes, though that isn’t any of her business).

    In fact, that was the only time we encountered problems with traveling.  The taxi driver was cool with her (Dulce did want his food), and was impressed that I only had to tell her “No” at the beginning of the trip and at the end when I was paying him.  The shuttle drivers were cool with it, from Park N Fly in Dallas, to the shuttles do and from AstraZeneca.

    I learned a lot and met people I had “met” online in the past.  I also met new online friends.

    Two big take aways:

    The DOC isn’t always friendly to Type 2s.  I haven’t found that to be true as a whole, though I have found some individuals who aren’t, I just ignore them.  My families favorite story in this regard:

    The first newcomer approaches a long time resident working at a gas station and asks:  “Is this town friendly”?  His reply: “How was the town, you came in?”.  Oh, they were great, we will really miss everyone”.  The resident says, “we’re just the same”.

    A second newcomer approaches the resident, and when asked if the town is friendly”? He asks the same question, and the newcomer replies: “Oh, they were awful, we didn’t find anyone we liked”.  He said, “Oh, I’m sorry, this town is the same way.”

    We moved a lot as a kid and we always strove to be the first newcomer, and it usually works.

    The second big take away is that there is a lot of problems with patient and doctor relationships in regard to diabetes.  I think we can solve a lot of problems in that space if we make blood sugar testing as routine as blood pressure testing.  If each doctor is required to do three things in an normal exam, I believe it will change how doctors handle diabetes.  These things are weight, blood pressure and blood sugar.

    We need to start treating blood sugar abnormalities the same way we do blood pressure.  There is little patient shaming over a high blood pressure reading.  There is no blaming the patient when medication doesn’t work.

    Again, AstraZeneca, thank you for the fun trip to Maryland!

  • #DiabetesLinkUp Thursday Night Dinner

    I'm sure this is the hotel's fault.  I'm in Maryland, I want Maryland crab, and they didn't serve it in the dinner.  Some horrible "chili" was on the menu.  I like chili but this was too spicy.  Wasn't bad with the Jasmin rice.

    Everything else was really good, and I did get an appetizer order of Maryland crab from the hotel restaurant.

    Mark Freeman of @thepathtochange and @everyonehasabrain was the speaker, and he had some very interesting points.  He is actually making a living with his blog, which is a very interesting thought.

    I got to meet Mark Hoskins @MHoskins2179 of @DiabetesMine.  Interesting enough, we have some common online friends.  I mention him because we sat next to each other and Dulce alerted on him and reminded him to take some meal time insulin.

    All in all, it's been a good experience so far.  Disclaimer: AstraZeneca is playing for this trip.

  • Traveling Mistakes

    Well, I have a bottle of insulin and no way to get the insulin out of the bottle.  Didn't bring a cartridge OR a syringe.

    I thought about that when I parked my truck but the shuttle driver picked me up too fast.  That's my excuse and I am sticking with it.  Of course I'm not sure where my truck is either.

    Oh, I have a full complement of diabetes supplies in the truck.  Usually good, since it's rare for me to go anywhere without it.

    Also had two Jenny Craig shakes in my carry on.  Really they are factory sealed.  They did let me take them with me.

    Other than that, everything is going well.  

  • The Hidden Disability Thing Sucks #DiabetesLinkup

    So I'm diabetic and traveling. That's a pain in itself.  I have to haul a CPAP machine, insulin, infusion set, and the rest of the diabetes stuff, even for an overnight trip.  Makes for a big heavy bag.

    And then I bring the service dog, which you would think immediately scream "I have a disability".  It also adds to the bag, especially since I have a late night flight and I always plan for airline screw ups.

    Nope, at home, the people that work out at the gym think I'm training her for someone else.

    The good news: American Airline personnel have been great.  Both the flight attendants and their mobility staff.  And yes, I caught the captain flirting with her, which is all good.

    But, probably my fault — they give me the furtherest room from the elevator. Probably thinking she'll be quieter that way.

    Oh, and the loudest noise we've heard from Dulce this trip: snoring.

     

  • Where I have been and where I am at now #diabeteslinkup

    I will be honest- I write a lot of good blog posts in my head that never made it to the blog. Life gets busy, and often I get on a path that I didn't necessarily choose. 

    However, my blog just happens to be the longest living diabetes blog.  

    There re was a time when I was a very active blogger and I was a very good diabetic.  My A1c was never over 7 and usually under 6.4

    Due to a lot of life problems I did a lot of slippage.  Some of it was burnout. Some of it was due to some life events.  I actually haven't felt control of my life for quite a while. 

    I had a job I loved, teaching a subject I was passionate about, though the working conditions were pretty bad.  Old building, poorly maintained and the victim of people who didn't care. I always felt bad for the students. 

    Now I am semi retired, teaching those same subjects, remotely, online which I do truly love. I have a volunteer job I really like, and people I like working with. I have a monthly income, and while it isn't a lot, I could make it if something happened to my husband. I have good health care.  

    So I try not to dwell too much on the past and should haves. 

    I have recently lost 20 pounds with Jenny Craig and got my own to 6.4. I am doing everything I can to keep from surgery especially orthopedic.  I work out pretty close to every day and have a good reason for not. 

    I make use of my tools, especially my diabetes alert dog   And just keep going on as best I can. 

  • Where I have been and where I am at now #diabeteslinkup

    I will be honest- I write a lot of good blog posts in my head that never made it to the blog. Life gets busy, and often I get on a path that I didn't necessarily choose. 

    However, my blog just happens to be the longest living diabetes blog.  

    There re was a time when I was a very active blogger and I was a very good diabetic.  My A1c was never over 7 and usually under 6.4

    Due to a lot of life problems I did a lot of slippage.  Some of it was burnout. Some of it was due to some life events.  I actually haven't felt control of my life for quite a while. 

    I had a job I loved, teaching a subject I was passionate about, though the working conditions were pretty bad.  Old building, poorly maintained and the victim of people who didn't care. I always felt bad for the students. 

    Now I am semi retired, teaching those same subjects, remotely, online which I do truly love. I have a volunteer job I really like, and people I like working with. I have a monthly income, and while it isn't a lot, I could make it if something happened to my husband. I have good health care.  

    So I try not to dwell too much on the past and should haves. 

    I have recently lost 20 pounds with Jenny Craig and got my own to 6.4. I am doing everything I can to keep from surgery especially orthopedic.  I work out pretty close to every day and have a good reason for not. 

    I make use of my tools, especially my diabetes alert dog   And just keep going on as best I can. 

  • On my way #diabeteslinkup

    I am at the airport, waiting for my flight.  So far, things are going well.  Left my car in covered parking at Patk N Fly. Only one problem, got picked up so fast I forgot record where I parked.  I know it was at the end about row 3 facing away from home. 

    TSA was its normal pain, the AA assistance person reminded me of the laptop, but I forgot that the have to go through the CPAP.  It also took them awhile to find a female assist.

    So now we wait.  

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  • Extended traveling #wwshd @shanselman

    I’m traveling for at least 10 days, maybe 2 weeks.  Taking 3 dogs to the National Beagle Club Specialty.  I’m competing in agility only since I forgot to measure the horse beagle (Jamie’s new nickname)

    —–

    • CPAP
      • 2 gallons of distilled water
      • Emergency battery
    • Diabetes supplies
      • Insulin – 2 vials, 1 pen
      • 1 box of infusion sets
      • 1 box of cartridges
      • 1 package of syringes
      • Pen needles
    • Medication
      • Pillpacks for as long as I have – may need to get some shipped to me on the road 
      • Allergy Meds
      • Neupro patches – full box
    • Dog supplies
      • 6 bowls (food and water)
      • puppy food
      • adult food
      • 3 sets of cages – one in the car, one at the show site, one at the place we are staying
    • Clothing
      • Workout clothing
      • Pajamas (suitable for walking the dog in the middle of the night
      • Business casual outfits for at least a week (will need to find laundry)
      • Clothing for showing in agility
      • Luau clothing
      • Shoes
        • Workout
        • 3 pairs of business casual shoes
    • Toiletries
      • Toothbrush
      • Toothpaste
      • Floss
      • Brush
      • Hair dryer
      • Hair straigther (hot iron or brush)
      • Makeup kit
    • Electronics
      • iPhone / cable
      • iPad     / cable
      • Mac Notebook / cable
      • cable for Apple Watch
      • Surface / cable
    • Food
      • Jenny Craig travel food

    Yeah, it’s a lot.  Nice thing is that i can get Jenny Craig food in Ocala.

  • Going to #diabeteslinkup

    I was pretty sure I could share but I am going to Diabetes Linkup on AstraZeneca's dime. 

    They have us completely booked, flying in Thursday afternoon, dinner and then all day Friday.  Back home that evening.

    Slightly disappointing since I would have liked to have lunch with my bosses but I will get there someday. 

     

    I am am looking forward to the event and getting back to active blogging.

     

     

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