Blog

  • Doctors are our employees

    I’ve told two people that this week, and I figure I need to tell the blog readers this too.

    Remember something VERY important. Your doctor is your employee. If things are not going well, you need to tell the doctor that. For example, if you can’t get an appointment when you need him, if his employees treat you rudely, etc. you need to tell him.

    Earlier this year, I was ready to fire my sleep doctor. The situation has been fixed though, and that relationship is going well.

    Of course, as employers we also have to realize that things aren’t always as easy as we would like them to be.

    One of my very good friends is cratering because of a medical condition. I was appalled to find out that she need Procretic, and she ordered it through Medco, our mail order service. Whenever I get a new drug, my doctors ALWAYS give me a sample, at least a weeks worth, that gives me a few days to make sure it’s what we want.

    Then I get a 30 day script AND a 90 day script. I fill both scripts immediately, that way I won’t run out if Medco messes things up, and I have a couple week window on the refill.

    This is the SMART way of handling new scripts.

  • Melt-down

    I had SEVERAL major melt downs today.

    First, I’m still not mentally really good because while I am finally sleeping I’m still quite a bit behind. Sounds weird, I do this a lot, but I’m scheduling this weekend to get caught up that.

    I got new computers in my classroom today, and it was real upsetting since I’m leaving it this school year, under protest, and it isn’t my idea. These are actually what kind of computers I would pick out for teaching my classes and have exactly the right software.

    While moving me to a different subject might be better off for the school, right now, I can’t see it that way. I wish they could leave me alone and do what I do best.

    I did do a fabulous job of getting things set up, but it always costs me a lot mentally and stress wise. Thus the melt dones.

  • Recall

    Got my Animas recall letter today. Knew it was coming. I’m definitely going to be proactive this round about the condition of the pump.

  • Detection Dogs

    A commenter posted this:

    If those 3 kids are on NPH or a mixture instead of a modern regimen they may have a lot of highs and lows naturally. Plus, if she has them change clothes every time and keeps them in a ziploc for several training sessions she may have plenty of opportunities without doing it on purpose. Is that possible?

    First if those three kids are having a lot of highs and lows, I’d be in the doctor’s office getting it fixed before I’d be worried about detection dogs. I’ve been there, done that, and frankly, that insulin regimin is for the birds. I will give that it would be easier for a child to deal with than an adult, since they didn’t know anything else. The problem with those regimens is that if you don’t do everything exactly right, you are going to have swings.

    As to the training. When I trained detection dogs, we used an established training protocol which had been tested. We trained every day. Those of us in the group who either had permits or were police officers and had access to real drugs, trained with them daily. The ones who did not have access to real drugs, used synthethic daily that had been tested in the laboratory AND the field. We trained with real drugs once a week under supervision.

    I have some problems with using the used clothing. Do we know for fact what the dogs are being trained for, is actually “in the clothing”? Has anyone tested to find out how long the scent actually does last? Since diabetes itself is barely understood, I’m not even sure anyone knows what scent we are looking for.

    Note: after dogs started alerting to certain cancers, they did isolate what was being detected by the dogs.

    There are two problems that I see with purchasing a diabetic detection dog. If the dog does a lot of false positives, the user of the dog is going to start ignoring the dog. If the dog does not alert when they should AND the user of the dog is relying on the dog solely to avoid lows and highs, some diabetic is going to end up in the hospital unnecessaily.

    I have no problem with someone purchasing a dog or cat, or getting one from rescue or a shelter with the purpose of obtaining a companion THEN noticing that the animal alerts. I do have a problem with declaring that animal a service dog since the behavior cannot be safely and reliably tested.

    I also do have a problem with the diabetic relying on that animal solely. See above paragraph.

    Another issue with service dogs is that if that label is abused and I know it has been, legimate users of service dogs are going to suffer.

  • Server problems

    If you read the blog last night and it was behaving strangely, make sure you run a virus scan. I did, freaked, but no permanent damage was called.

    Apparently for a short period of time the server had been hijacked. Everything is fine now, but it was a bit scary.

  • DLife and Detection Dogs

    I did post a shorter version of my blog rant on the DLife website forum under show feed back, and the DLife people also claim the low was accidental.

    I still think it was very unfortunate that they included the kids low on the show.

  • Animas Recall

    I’m really worried about the recall, and I guess I shouldn’t be but…

    When the battery cover on my IR1000 chipped, I was so relieved that they replaced the pump, I didn’t squawk when the replacement pump wasn’t in as good condition as my old IR1000.

    The cover was a bit worn, along with the buttons, and it creeped me out a bit when I saw that, because I knew that someone else before me had worn it and didn’t take as good care as I do.

    I think I’m going to tell them that when they call to schedule the delivery. Here’s what is going to happen. They will fix the pumps they have in stock and ship them out. Then when the patients return their old pumps, they will refurbish them, and update the software, and ship out those pumps. So I’m sure I’ll get a used pump.

    So far, mine looks like it did when it came out of the box, and I expect the replacement to look the same.

  • DLife and Detection Dogs again

    Someone on the insulin pumpers list claimed to relay a post from the woman on DLife with the detection dogs.

    The post claims they use clothing worn by one of the children when they went low and didn’t induce lows. It’s certainly not proof enough for me.

    I still think raising 5 children and training 16 dogs are too much for any small group of people (I am assuming 2, but she may have some help).

    I still think it was horrible that the kid was recorded for a TV show going low and that they showed the dog’s alert. I have certainly been left with a very negative impression of everyone involved.

    I still stand by my earlier blog entry. I was certified both as a detection dog handler and as a trainer.

    We don’t know enough about what is going on in diabetics to develop training methods to produce reliable dogs. Anyone selling such a dog is doing the public a diservice.

  • More on embroynic stem cells

    Unfortunately both sides have agendas on this debate. And I have REAL problems with the agendas on both sides.

    For example, those who are on the embroynic stem cell side, NEVER mention what they are talking about. Therefore the vast majority of people do not realize that the debate is on embroynic only. Scientists are free do what they want with adult stem cells and blood cord stem cells. They are also free to experiment with the existing lines.

    They also paint the other side with a broad brush. Obviously from the couple of posts I’ve written about it, I’m against embronyic stem cell research. I’m also firmly against abortion from a practical point, and I’m also against many fertility treatments — especially the ones that result in litters of premie babies — which by the way embroynic stem cells is a side effect off.

    The practical part of being against abortion? What an absolute waste of money to have sex without conception and then pay for an abortion that you will have to regret forever. I’ve managed not to get pregnant on purpose for over 20 years. And I’ve often practiced 3 methods of birth control at once, and usually 2. But that’s off the topic. My objection to the fertility procedures are again practical. God has his plans, even if it doesn’t work out right, it’s because he doesn’t want it to happen. It’s also a great deal of money to spend when there are lots of children needing homes. (Yes, I’m hoping the Amazing Race couple will realize that they should take home some of those African children).

    But all that is beside the point, back to the point.

    They also paint the whole right to lifers with a broad brush. There are very few right to lifers who bomb clinics — in fact, I think we figured out it was just one, he just confessed and he’s been locked up for a while. That’s goofy too. Oh, there were a few other random fruitcases, but if it wasn’t anti-abortion, they’d find some other reason to blow things up or shoot someone.

    On the other hand, I get fed up with the right to lifers when they start comparing embroynic stem cell research to Nazi Germany, there IS an internet rule of debate that states the minute that the agreement degrades to Nazi Germany, the person who brought it up loses. Wish we could pass that one across the board on public debates.

    From a practical standpoint, the whole embroynic thing is an absolute waste of money until we’ve explored the adult stem cells. And of course, once you get to know me, you’ll realize that my main objective is always to spend money as wisely as possible, helping the most. That comes from working 13 years on a shoestring budget, with a low priority program.

    I really DON’T believe that embroynic stem cell research is the answer to Type 1 Diabetes. It certainly isn’t the answer to Type 2. In fact, I truly believe we have only scratched the surface of both problems, and we aren’t even 10% into the answer no matter which direction you go.

    We aren’t going to solve Type 1 until we understand the auto-immune process and we understand what destroyed the whole insulin process in the first place. The new islet implants (I don’t think they are true transplants, since nothing is removed) show promise, but the medical people are going to scratch their heads and wonder why it won’t work until we solve why it happened in the first place. We won’t have a cure into that happens.

    I’m personally not that much into the whole Type 1 issues anyway, my problems lie more into a genetic cause (which I’ve done my part to stop, thank you very much), and the process got started way too long ago for any medical solutions to really help. I’m just buying all the time I can.

    In other words, this is the last you’ll see about this issue posted on this blog unless it is in the comments.

  • One of the reasons I have diabetes and I teach…

    I don’t know what brought this up, but one of my teacher friends sent one of her students to talk to me about the insulin pump.

    Come to find out, the young lady is a senior in high school and wants to go out of town for college.

    I told her why I like the pump and then went into how I managed my blood sugar with it. Like all people when I first explain it, she had assumed it checks blood sugar (for those of you reading the blog that doens’t know, NO it doesn’t — that technology isn’t available yet).

    Well, come to find out, it sounds like she doesn’t manage her diabetes well enough, and I’m with her parents and told her this. I also told her — and made sure she understood that I was talking to her diabetic to diabetic, not teacher to student, or adult to child) that she needed to start managing her own diabetes.

    I’m in an unique position for these kiddos, since I DO manage my diabetes and do use insulin. I can see both sides of the situation, both the parent side and the kid side. So hopefully I got something good across to her.

    But there is no way I would encourage her to even go on the pump until she learns to do her own management, much less go to college!